View Full Version : Update on Beth and the VNS
06-02-2009, 02:17 PM
As you will all remember Beth had to have her VNS resited due to the surgeons putting it in the wrong place. Well this was done early December 2008. Well what can i say but its a complete lash up :thumbsdown:. She has so many side affects with it they have had to put it on a low setting and it is not controlling her seizures. She has spent the whole of the week having seizures on waking and needing rescue meds.
Her side affects are hardly any voice which has not improved at all in the last 9 weeks, she can not swallow fluids with out coughing. Until they turned it down on monday she had spent the two weeks from when it was switched back on coughing and sneezing all the time. They had left it off for 6 weeks to give her time for everything to settle and staff holidays plus Christmas.
I am completley devestated and very worried about all the seizures she is having.
:hug2: I have no words. :hug2: :(
06-02-2009, 02:23 PM
OMG Michelle, I am so sorry to hear what a terrible time you are both having. :comfort:
06-02-2009, 02:53 PM
oh my :hug2::hug2::hug2:
06-02-2009, 04:11 PM
Michelle l don't know what to say. You must be out of your mind with worry. take care hun we are always here for you.:hug2:
06-02-2009, 05:33 PM
Poor Beth, she's been through the wringer and back that's for sure. It sounds really scary what she's going through. Lots of :hug2: for you both.
Will be thinking of you and praying things improve.
06-02-2009, 06:09 PM
sorry to hear that Michelle :hug2:
06-02-2009, 06:15 PM
:hug1: So not fair on her Michelle.
06-02-2009, 09:39 PM
I'm sorry to hear this - poor Beth and poor you! :hug2:
07-02-2009, 07:11 AM
Oh no :( What else can you both go through, I am so so sorry for you both XXXXXXX
07-02-2009, 11:58 AM
Thankyou all. She was a little twitchy this morning but not as bad as the rest of the week thankfully. I just hope she stays like this. She has gone off shopping with the carers to buy herself some boots. Thing is she did not want them when i suggested it :unsure:. Kids hey :lol:
07-02-2009, 04:00 PM
So sorry to hear this, Michelle - poor Beth.
It breaks your heart what our poor kids go through doesn't it...it is so unfair.
Hope you get it sorted and that she has a lovely day shopping - she deserves it xx
Hugs for both of you!
Glad she's feeling a bit better today! :)
12-02-2009, 02:59 PM
So sorry to hear this Michelle. :hug2::hug2: Hope they get her sorted out soon.
12-02-2009, 06:30 PM
Thankyou all. We are going to see the doctor on monday. School have also said there concerns to me and they have written a letter to the doctor. I do not know what they will now suggest but i have a suspicion they will fail the vns.
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