Hi all, hope you are all well. Life is very hectic at the moment. We have been inundated with social services as Beth is officially an adult now , well without sounding mean only by her date of birth due to her needs.
I am carerless at the moment and have been since November when the carer handed her notice in 10 days before she was due to go to Florida with us, but i am over that now. The agency keep letting us down so its all down to me with some help from the family.
Beth has started to lose her swallowing reflex and food is getting stuck which is a big worry. She is mainly fed through a tube now but still likes to have a little to eat, sadly she refuses mashed food.
Her mate from school passed away and we all miss him a lot. His mum is being very brave. She has lots of contact still with us all which is great but must be hard on her.
I have a nice new Nokia N97 which i am loving but still getting use to.
We had a wonderful 3 weeks in Orlando made extra special by a group of people and one of them is a regular on here (arkvilla). They bought Beth a beautiful Disney gift basket and a stunning chamilia bracelet.
So thats our lives at the moment.