Little bit of an update on Beth
we had our appointment and after social worker tried her hardest to put Beth on continuing health we stood our ground. She will stay under social care and has gotten a one to one in her new respite bungalow. The SW did warn me she will do everything to over power me but i am not worried and hopefully Beth will now fall into the huge black hole and they will forget her and she will continue to get the package for a while. Its all to do with money.
She has continued to lose weight but thankfully she has a new dietician who listens to us and talks sense. I have a multi agency meeting at 3pm over this and we are going to tell them what we want and they need to get on and do it.
We also had some bad news about her spine, some of you would have read about it on FB. Beth had spinal surgery in 2006 and the surgeon only put half rods in and because beth has not hip joint on her right hip she has continued to curve and twist making seating difficult. The surgeon wants to remove her rods, break her spine and put full rods in. We have said no for now and will review in a year. It will all be down to her seating and if the wheelchair clinic think she will have issues with this in the future then we will look at having it done then. We need to get weight on to her and her seizures under some control as they are not good at the moment. beth is being her usual happy go lucky young lady as she always is.