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Thread: Anyone know anything about M.E./CFS?

  1. #1
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    Robyn has just been diagnosed with M.E. and we are trying to come to terms with the changes we are going to have to make to our lives.
    She has already been advised to drop one of her A Levels.

    Has anyone had any experience with this that can give us any advice?

    Have no idea about it other than the mountain of paperwork the doctors gave us.

    It's heartbreaking to see my normally so active and happy 16 year old unable to get out of bed for school and permanently looking so pale and like she hasn't slept for weeks.

    School and the doctor have been brilliant but we now have an 18 week wait for her to be assessed by a specialist.

    Any help gratefully received.

    Thanks guys.

    XXX

  2. #2
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    No experience, just wanted to send you and Robyn a huge





  3. #3
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    Oh Hun my brother had it when he was a teen. He is fine now and is training to be a nurse. I have a friend at work who has it, I will ask her tomorrow for any resources. Just remember not everybody has it to the same extreme














  4. #4
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    No help or advice I'm afraid but I have an infinite amount of for you all.





  5. #5
    Senior Member Esmeralda's Avatar
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    What Brit said :( Don't push her too hard, she has to pace herself on the days she feels ok or she will end up flat on her back for days afterwards. If you go to Disney use a wheelchair. Will post more later.




  6. #6
    Senior Member Esmeralda's Avatar
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    Just out of interest did she ever have Glandular Fever?




  7. #7
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  8. #8
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    I can't offer any advice but big hugs coming your way and a bucket load of too.
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    Disney International College Program: May 2011 working in Attractions (Voyage of the Little Mermaid & Disney Junior: Live on Stage!)

  9. #9
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    Oh teresa, that mustve been a shock for you all - havent any advice or eperience im sorry, but for you all



  10. #10
    Senior Member mumof2's Avatar
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    no advice, but big hugs for you all




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