Robyn has just been diagnosed with M.E. and we are trying to come to terms with the changes we are going to have to make to our lives.
She has already been advised to drop one of her A Levels.
Has anyone had any experience with this that can give us any advice?
Have no idea about it other than the mountain of paperwork the doctors gave us.
It's heartbreaking to see my normally so active and happy 16 year old unable to get out of bed for school and permanently looking so pale and like she hasn't slept for weeks.
School and the doctor have been brilliant but we now have an 18 week wait for her to be assessed by a specialist.
Any help gratefully received.