up in london for my 3 month check up.
had the usual 6 minute walk test, which is still very hard for me, but getting slightly better now im on this new drug....the thing that really pleased me was the recovery time, it just took a couple of minutes and i was back to normal...at the end of my time on the trial drug it took like what seemed forever and wasnt a nce feeling at all
the pressure in my lungs is still high, you can see the pulse in my necer is still really prominent....but im still on a very low does, so my body doesnt get used to it, i will know that when i dont suffer the side effects, which ive had nearly all of and lost 2 1/2 stone in weight, havent lost any in a couple of weeks so im pleased with that. im still on the HIGH protein drinks to fatten me up, 1/2 st would do i think and stay there
so overall, its looking goodish, need the pressure to come down tho, the drug works i really dont fancy a heart and lung transplant