just thought id share
i was up in london at the royal free hospital for an angiogram yesterday. my pressures are still very high, ive got a swollen liver, causing extra breathlessness, cant walk as far and can only eat half as much as normal as its pressing on my stomach.
got to go to papworth hospital to be assessed for a heart and lung transplant as a precautionary measure if this last drug option doesnt work. also got to have oxygen all the time now :(
my specialist put me on a better secondary drug to get more water off me and hopefully it will help the liver to get back to its normal size. he wants me to atleast lose 6.5 pounds, gulp!!! ive already lost 2.5 stone
before all these issues im now having, i felt the best i had in 5 years since being diagnosed, just my flipping luck its turning totally around :(