well i had a discussion with a consultant and another guy. he told me that a transplant is more likely than not, but not definate.
he put it in perspective like this: if i have 5 years to live as i am now my quality of life will not be very good compared to you guys. if i have the op (because its still low odd of survival) if i have 5 years to live with new lungs, then my quality of life will be the same as you guys, but there is very good chance that i could survive much longer than that and live a full life and a good quality of life. so if im offered the op theres no way i can turn it down i have to have it, its a no brainer if you ask me.
he also told me i wouldnt need a heart transplant at that stage as the heart has good powers of recovery as its my lungs that are the problem. so the heart wouldnt produce the excess water which has caused my liver to swell so all of that is a total about turn and all would recover.
i have to go back for 3 days for the assessment and lots of tests, its a full on 3 days so would have to stay in a b&b in the village as there are no means of staying at the hospital.
in the meantime with the new diuretic they will up the dosage to get the water off so hopefully allowing the liver to get back to normal size, then my intravenus drug will have to do a lot of work to control everything, as the diuretic isnt a cure for the swollen liver just a remedy to get it smaller. so there is lots of work to be done and i need to make a significant improvement if im not going to need a lung transplant
so time will tell......thankyou for listening to my problems, sorry its long winded