sorry ive not been around much these past few weeks. ive not been too well and lost even more weight :( also not been feeling like being on the pc although ive popped on at night just before bedtime.
anyways up. i had a call from papworth today and they've asked me to go in on monday for 3 days in the transplant ward to have all the tests done i need to have so if need be i can go on the register for the lung transplant at short notice if needed.
its still scaring the hell out of me even though i know i will need it done if the drugs dont work.
i cant remember if i posted this but the odds of survival are
1 year 80%
5 years 50% so not good long term really but on the other hand i could go on for a normal term life expectancy. i just need to be as fit as i can if i have/need the op
thats about all i can say at the mo