It was a bit of a nightmare. We travelled half way up and then phoned to see if they had a bed and they said no. They told us they would phone around 4pm. We decided we might as well go to Bristol and do what 3 girlies do best shop. When we got there we had to change Beth and when we did this she started to scream which caused concern. We went to the childrens to be told she was to old at 17 :( , so we went to Bristol royal infirmary. They were excellent and did lot's of tests. They found that the femur was catching on the pelvic socket again. She had the ball joint removed in 2003 (worst decision ever). They said she needed a nerve block and would see if Frenchay would do it at the same time as the vns. We then were told we had a bed at Frenchay. We had a cubicle for that night on the epilepsy ward and the staff were great. The following morning she was first on the list, the ortho's said they would not get involved as she was to complex :mad2: and the neuro reg said they would be replacing the battery in vns :confused2 :confused2 . I was now very worried, thankfully the main guy came and new what he was doing. He said his last reg put the vns under the arm for cosmetic reasons :nonono: so Beth could were low cut tops and dresses :nonono: . He said th surgery would take around 1hour to 1 1/2 hours. 2 hours later still no Beth, so now worried but the nurse said i was pancing for nothing. After 4 hours Beth finally goes to recovery. The nurse said there was no bed for her as she had to go to neuro surgery ward due to complications :omg:. I asked if i could go be with her and she said they do not normally allow that for adults ;) . Finally we were allowed to go and be with her and we then finally got a bed three hours later. Thankfully Beth was able to come home that day. Apparently the wire broke and the surgeon said he new i would not be happy and decided although it was risky to try to remove the wire and redo it all.
She is a little down in the dumps at the moment but will hopefully pick up soon. It is turned off for now but i am happy with taht as we are chocking on fluids and have no voice again. Never ever again.